tag:blogger.com,1999:blog-8533094032031927862.comments2023-03-17T07:57:51.353-07:00Larisa Explains it All.Larisuhhhttp://www.blogger.com/profile/16778809987649471843noreply@blogger.comBlogger23125tag:blogger.com,1999:blog-8533094032031927862.post-38608895919099875692011-08-02T01:18:25.456-07:002011-08-02T01:18:25.456-07:00That's true. Thank you :)That's true. Thank you :)Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-19732939214104144262011-07-31T11:37:40.919-07:002011-07-31T11:37:40.919-07:00I live in the feeling. Glad it worked out for you ...I live in the feeling. Glad it worked out for you though.thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-44889247127260143522011-07-29T18:15:06.488-07:002011-07-29T18:15:06.488-07:00i think all things cycle no matter or whether we p...i think all things cycle no matter or whether we pray for it, beg for it, ask for it or whatever else.. it all comes back. it may not be right when we want or even if we want it to or not.. but it does. i think it's just to see what you've learned. really enjoy the post though!thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-76865255472648498452011-07-29T18:13:07.216-07:002011-07-29T18:13:07.216-07:00This comment has been removed by the author.thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-61449581797310710902011-07-26T23:36:43.092-07:002011-07-26T23:36:43.092-07:00Well, I think you'll get a second chance if it...Well, I think you'll get a second chance if its' meant to be. If you don't, maybe it is to ensure you won't be disappointed again. A lot of times you wish for a second chance, and the cycle repeats itself and becomes more painful for everyone involved each time it happens. Just hope for the best, if anything.Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-23460256309648122352011-07-17T16:14:04.551-07:002011-07-17T16:14:04.551-07:00This comment has been removed by the author.thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-67688148662752521192011-07-10T15:45:16.955-07:002011-07-10T15:45:16.955-07:00Not a problem ^_^
It's just a sad thing to thi...Not a problem ^_^<br />It's just a sad thing to think people could just give up, let go, not fight or whatever especially after they swore and made promises about what they would give and do. Hope is something that, in my opinion, never disappears. you may try talking yourself an heart out of having it but remnants will forever be. It's a shame words mean nothing anymore. And remember, You're Not Alone, i'm just hoping, waiting and praying for my second chance.thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-69351112235069028332011-07-10T02:42:10.838-07:002011-07-10T02:42:10.838-07:00Aw, thank you. That comment made my whole night :)...Aw, thank you. That comment made my whole night :) I'm glad I'm apparently not alone in these thoughts either. I think it's very true, even if most don't share the same belief.Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-76758508340055663572011-06-27T15:45:44.226-07:002011-06-27T15:45:44.226-07:00I know exactly how you feel, you do all you can an...I know exactly how you feel, you do all you can and place ego aside for something you believe to be far greater then yourself; whether it be for family, friendships, a relationship just to hear that you most likely won't get the chance that you would give so easily, like you said it "takes away the little hope I once had... What is the point of saying sorry, seeking forgiveness, and learning from mistakes when the otherperson doesn't give you the one chance you need." I hate to keep quoting you (lol) but it's just true, "I'm tired of having to prove to people that I'm the same. If you knew me, you know me." It sad how others let fears of perpetual pasts prevent them from moving forward, or giving that one true second chance that could make all the difference. It baffles me and with that last part you nailed it, "If someone means so much to you, why would you let them go that easily? At one point, they were the person you needed." I'm glad I stumbled upon your blog, It makes feel like i'm not alone in my feeling. I still have hope.<br />Bravo Larissa.thee nice guyhttps://www.blogger.com/profile/01123811464157325729noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-48971884967320099802011-01-18T11:21:01.149-08:002011-01-18T11:21:01.149-08:00Hi,
I've been registered with FIRST ever sinc...Hi, <br />I've been registered with FIRST ever since I was born. I get newsletters frequently and have recently signed up for the search to connect with others with related diseases. But there is little information in those newletters and are more geared toward the common forms of Ichthyosis. I never find information about my type because it is in the 5% of Ichthyosis not consumed by Vulgaris. I have Netherton's which limits the information even more. Plus I realized I missed the conference, so I'll have to wait another year to attend. Thank you for letting me know though! If you do have more information you can email me at larisuhh@gmail.com<br /><br />Thanks!Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-2717058401293893602011-01-18T05:44:00.598-08:002011-01-18T05:44:00.598-08:00Hi Larishh,
I want to let you know that there is ...Hi Larishh,<br /><br />I want to let you know that there is a foundation that can help you. I am the Public Relations Coordinator for the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST). We are celebrating our 30th anniversary this year. Our mission is to educate, inspire, and connect those touched by ichthyosis. We have a wide variety of literature, a newsletter, bi-ennial family conferences, and a regional support network to connect you with other affected individuals. Please visit our website www.firstskinfoundation.org or email me at lbreuning@firstskinfoundation.org if you would like more information.Anonymoushttps://www.blogger.com/profile/10078994993710922102noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-92046103879820018402011-01-18T01:41:57.561-08:002011-01-18T01:41:57.561-08:00haha, that would be your favorite line. and thank ...haha, that would be your favorite line. and thank you :)<br /><br />i guess that's true. but i really don't see the point in starting one. it seems like people try and fail when it comes to this. if anything i wouldn't help mine, i'd help the more severe ones i've witnessed. mine is nothing compared to some people. but that would be really awesome to work on one. i wouldn't even know where to begin.Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-26683474356924371732011-01-17T23:06:37.084-08:002011-01-17T23:06:37.084-08:00my favorite line out of the entire thing: I never ...my favorite line out of the entire thing: I never go to the doctor for anything, unless I really think I'm dying.<br /><br />that just proves how strong of an individual you are. :)<br /><br />by the way: you should start a non-profit, i'll support and help you with it! just because your illness is rare, doesn't mean there aren't people there to back you up 100%Anonymoushttps://www.blogger.com/profile/06102540942438391269noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-24826495258774055482011-01-17T23:05:53.630-08:002011-01-17T23:05:53.630-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/06102540942438391269noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-2923718814992943082011-01-17T12:36:51.886-08:002011-01-17T12:36:51.886-08:00Hey,
Yes you did inspire me, thanks!
I probably ...Hey, <br />Yes you did inspire me, thanks!<br /><br />I probably should have explained it clearer. But you are right in the definition part. It WOULD be considered chronic by the book, and by the definition. I just personally do not label it as such because I don't believe it impacts anything I do. It does not make me suffer enough to not be able to go out, play sports, lead a normal social life...etc. When I think of chronic I think of cancer patients going through Chemo just to get through their lives in hopes it will cure. For me, I don't even take medicine. So how chronic could it be if I don't take anything for it? However, I consider something as absolute as my insomnia chronic. That literally does impact a lot and I do take medicine to help. But yeah, I think it's all relative. I know for probably anyone else with this disorder, they would consider it chronic. But I'm one of those people who doesn't look at myself as any different to anyone else.<br /><br />Your welcome, thank YOU for your reply and input.Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-74071810661249182272011-01-17T11:38:00.459-08:002011-01-17T11:38:00.459-08:00Hi
Glad I could inspire you to write this - it is ...Hi<br />Glad I could inspire you to write this - it is beautifully written, and courageous to.<br /> <br />One thing I do want to say is that I believe identifying with having a chronic illness or disability doesn't mean self pity, giving into a stigma or that your illness is worse than others'. I know that there's someone always worse off than me. But I also know that my friends with diabetes, epilepsy, crohn's disease or arthritis (etc) have completely different illnesses to me, but we can relate because we may have experienced similar things. Our illnesses affect our daily lives. We might miss long periods of school. See many specialists. Take medications. Feel isolated. Have a morning routine we can't miss. Etc. <br /><br />It's all relative. <br /><br />I really enjoyed this post. Thank you.<br /><br />CarlyCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-28576823862422499282011-01-16T12:00:18.204-08:002011-01-16T12:00:18.204-08:00Hey!
Thanks a lot! I actually switched my major f...Hey!<br /><br />Thanks a lot! I actually switched my major from journalism to communications, so now I just write for fun. But I would love to start writing about some of the things you do. I'm just not as open about it as you are. I don't talk about Ichthyosis at all with ANYONE. Even though it's obvious I have something wrong. <br /><br />I'll check out that blog for sure. But I don't believe anyone can even understand a situation they aren't apart of. Even the other person. A lot of times people do not want you to be happy, so they try and convince you you're better off without someone who made you complete. And for us, anyyyy person who can look past our disease is instantly a new feeling we feel a lack of, you know? If someone loves us despite our biggest flaw, we want to love them forever no matter what, even if we would maybe be better off without them. But I guess that's a desperate approach.<br /><br />Normal people could not ever understand this. They don't get that someone loving us means more than anything, so I totally know where you are coming from.<br /><br />I added you on Facebook, and I look forward to talking to you more. It seems like you are a LOT like me which is really exciting. I also love fashion and Australia!<br /><br />Let's keep in touch!<br /><br />LarisaLarisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-74881394621746802502011-01-16T03:33:37.945-08:002011-01-16T03:33:37.945-08:00Hey,
firstly, thanks for stopping by my blog and ...Hey,<br /><br />firstly, thanks for stopping by my blog and leaving a message. I have read some of yours - you are a beautiful writer. We have writing and skin and being a comms student in common!<br /><br />This part of your blog entry felt like I was reading my own words/thoughts: <br />'Even though all of my friends don't understand why I miss you, I still do. They think I should be mad at you, forget about you, and move on. But I can't do that with someone who meant so much. It's so hard being here so close to you, but so far away at the same time.'<br /><br />I love/d someone recently and no one understands why I miss him, why he meant so much, and why I love him. It's so difficult. I wrote a few things about him on my blog:<br />http://carlyfindlay.blogspot.com/2010/10/big-empty.html<br /><br />http://carlyfindlay.blogspot.com/2010/11/everything-and-nothing-to-say.html<br /><br />Sometimes I think I grieve for the love lost because of my ichthyosis. Because he saw past my red face. Other times, I just know he was not the one for me. <br /><br />Please keep in touch - find me on Facebook if you like. <br /><br />I look forward to reading more of your writing.<br /><br />CarlyCarly Findlayhttps://www.blogger.com/profile/01368145710452826385noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-76401288801150071332010-08-15T16:29:06.575-07:002010-08-15T16:29:06.575-07:00Its crazy how we went to the same camp, never said...Its crazy how we went to the same camp, never said a word to one another, but then all of a sudden we start talking and could FB chat for hours! And after reading this its like we live the same life when it comes to being a friend. I think of myself as a good friend and at the same time I think that others take my friendship for grant and dont show that they appreciate me. Im there for them time after time, but when I feel like I need something I dont know who to turn to. I want to be the "best friend" to everyone, even the ones I just met because when I make that person feel better or put a smile on their face, that is what makes me happy at the end of the day. I often think "will I be able to do this for long or will it soon drain me? do I stop now so I can save myself or do I keep going and pray someone will one day save me?" I have tons of friends, but sometimes I sit in my room and feel so alone with no one to talk to. Sorry Im rambling haha but I think I just got another idea for a future blog haha might use some of the stuff I just said. You are an awesome person and an amazing friend Larissa! I love you girl!Jassaminehttps://www.blogger.com/profile/09498069416048461538noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-17420474389907211902010-07-29T13:32:43.245-07:002010-07-29T13:32:43.245-07:00I feel the same way. We both go through the same t...I feel the same way. We both go through the same things with friends because we both care too much and end up getting hurt in the end. You're one of the only one's who I honestly know understands that and understands how to be a friend. I love that we've still managed to keep it up even though we haven't lived close to each other since 6th grade. That's how I know you're truly a best friend as well and I have your back no matter what <3 I love youuuu <3Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-91515190042397151522010-07-29T13:27:02.129-07:002010-07-29T13:27:02.129-07:00Haha really?! yeah the music video came on and it ...Haha really?! yeah the music video came on and it made me like them even more. We're just too alike :)Larisuhhhttps://www.blogger.com/profile/16778809987649471843noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-85299779891952921142010-07-28T21:08:20.179-07:002010-07-28T21:08:20.179-07:00This is truly one of the sweetest things I've ...This is truly one of the sweetest things I've ever read. You are an AMAZING friend and I consider you one of my best friends even though we don't get that many chances to see each other. I know how you feel, I've been there countless times after having to move so many times. Don't let fear or anything get in your way because you deserve better. I truly mean it when I say that I love you <3D.Deshttps://www.blogger.com/profile/18051387952997205319noreply@blogger.comtag:blogger.com,1999:blog-8533094032031927862.post-8026315214478972812010-07-26T20:16:23.128-07:002010-07-26T20:16:23.128-07:00That's funny because I just listened to this t...That's funny because I just listened to this the other day and was thinking about posting the lyrics to my page.D.Deshttps://www.blogger.com/profile/18051387952997205319noreply@blogger.com